- Describe the diagnostic features and pathophysiology of sickle cell disease (SCD).
- Discuss both pharmacologic and non-pharmacologic treatment strategies for SCD in an adolescent, using an integrative medicine approach.
- Discuss psychosocial, environmental, and lifestyle factors that may trigger an SCD crisis or complicate treatment.
- Engage with members of the interdisciplinary team to provide patients with multiple approaches to pain management, in keeping with the patient's preferences, particularly when pain is chronic and severe.
- Demonstrate how to encourage active self-management by adolescents, in concert with ongoing provider care, as they transition to adulthood and the adult healthcare system.
Discipline-Specific Learning Objectives
- Review acute pain assessment and management in SCD patients.
- Discuss ways to teach and support self-management of adolescents and young adults with SCD as they transition to adulthood.
- Transfer essential information about the SCD patient at times of transition between providers.
- Given that good pain control reduces absences from school, discuss the complex role of the school nurse in managing and advocating for adolescents with SCD.
- Describe the nurse's role in helping students with pain control, including development of a 504 plan that enables a student to obtain accommodation appropriate to their medical condition in required academic and physical activities.
- Discuss why some students with SCD refuse to disclose their illness to schools and classmates, and how school nurses can help to protect their confidentiality.
- Identify barriers to care for adolescents with SCD, including implicit bias among care providers.
- Discuss the specific challenges that adolescents with SCD face as they transition to self-management in the adult health care system.
- Discuss resources available to SCD patients, including support groups, and how they might access these, locally and nationally.
- Educate adolescents with SCD on realistic pain management expectations, and help transition to self-management of their care.
- Design an appropriate pharmacologic and non-pharmacologic pain management regimen for patients with SCD that reflects specific patient and environmental factors.
- Counsel patients with SCD on safe and appropriate use of hydroxyurea and analgesics.
- Describe the process of hematopoiesis
- Describe the pathophysiology of sickle cell disorder
- Describe the pain pathways associated with sickle cell disorder
- Describe how clinical psychology can foster patient understanding of the biopsychosocial model and cognitive-behavioral framework, and how such understanding can promote enhanced health and wellness.
- Identify behavioral and other non-pharmacological strategies for stress and pain management.
- Discuss the medical team's role in helping the SCD patient to transition from pediatric care to adult care.
- Describe the role of the physical therapist in treating the cardiothoracic, musculoskeletal, and nervous system effects of SCD.
- Describe the role of the physical therapist in educating an individual with SCD about the potential benefits and risks of various forms of exercise.
- Discuss how physical activity may help an individual with SCD to maintain good health.
- Discuss the relevance of acupuncture to the management of acute and chronic pain.
- Describe how a licensed acupuncturist examines and diagnoses a patient with SCD.
- Discuss the current evidence base relating to acupuncture and SCD.
This Page Last Reviewed on May 01, 2021
University of Rochester